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Showing posts with label autism spectrum disorder. Show all posts
Showing posts with label autism spectrum disorder. Show all posts

Nice morning shopping

may 9 2008

I called the dentist early in the morning.
Couldn't get an appointment sooner than next friday!!!!
All I can do now is hope that the rest of the molar won't break off.

Then my oldest and I went to the shopping centre to find him new glasses.
He tried out a lot and ended with one of 299 euro.

So when the woman who helped us left for a moment I told him that he should have another look, as 299 euro is a lot.

When she came back he asked for another look al models that looked the same.
She smiled and told him that she also thought that these glasses were far too expensive.

She handed him a variation on one he already tried, but didn't like.
Now the rim wasn't black, but a nice colour of grey.
When he put it on his whole face seemed to change for the better.

After that we went windowshopping, bought some bread we never have bought before, tasted cheese in a shop and bought a piece, and went home.

We had such a good time!


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The files arrived, grrrr.....

may 6 2008

We asked the council to send us the files they have about my autistic son.

They arrived today.

I haven't read more than the first page.
It's a healthy decision, because my bloodpressure and everything else went over the roof.

In the past, when he was at basic school, we went to the council to talk about the fact that we expected problems at school.
We didn't know what school was able to care for his needs.

Basic school had been a very bad experience.
I was called to school for an emergency at least twice a month. Meaning they called me twice a week.

The schoolyear was a complete horrormovie, with a principal who thought he could calm children with laying his hands on their shoulders and looking them deep in the eyes.
Ha. Do that with autistic children and you'll get a panick attack.

They guy interpreted that as agression...

Well, the representative of the council called him after she had spoken with us, and he told her that we painted a picture that wasn't right.

I can understand he wanted to protect himself and the name of the school, but that he would go as far as that!

So now we understood why we were treated so bad at the meetings of last week and the week before.
They just don't believe us.

Those schools protect themselves and they don't care for the individual pupil.


I have written a reaction to this file, but I'm not sure if I should bother to send it.
On the other hand...it's a legal document and it can be used against us might it come to a courtcase.

Any input will be welcomed!


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Can you hear me yell and scream?

may 2 2008

I think that when you listen well you can hear me yell and scream.

It's vacation here.
That's a time of surprises here in the house, because each and everyone deals different with this time of year.

This is the time of national celebrations:
Queensday at april 30,
For some (not us) labout day at may 1,
for all rememberance day at may 4 and
freedom day at may 5.

Without any warning whatsoever the father of the children decided he wouldn't go to work for a week and a half. So he's on vacation here too.

Me oh my...5 with autism spectrum disorder are crowding the house!!!

So when I came back from the birthdayparty I fell straight into a difference of opinion between two of them.

People with autism spectrum disorder like routine and rules and regulations.
Vacation breaks with it all.
And on top of it, dad creates rules of his own, is not consequent, and can't deal with the fact that he himself is not working.

I was so happy to see a friend at that little party. For an hour I talked with a friend who flies on international flights as a stewardess. She's not often in the country, so I was delighted.

And when I came back... Ugh...
I tried to drop some entrecards.. the system fell silent.
Even the retailtherapy at ebay fell through.
I tried to bid on a victorian dollshouse item of an english pound, and I missed it by one dollarcent. Grrrrrrrrrrr!!!!!

Well, I've laid out my rules for tomorrow, and I'm looking for my policecap. LOL!

I really long for a time to be ME.
Just ME!!

I sniffed at it this afternoon, and I want more.

BTW, the kid loved the tennis-set.
So not everything was bad today.


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Help me score for autism

april 30 2008

This month was autism awareness month.

The earnings of this month will go to a good cause: autism.

The blogentry that scores the most at buzzfuse will win $500

I would love to have the winning entry this month, because so much good can be done.

Please rate my topentries of this month today, so I'll be able to donate the money to this marvellous cause.

Trust me, I won't get you into something you can't get out. I would never do that.
Registering at Buzzfuse is free. (I won't win anything).
Then your rating will be noticed and counted.
It's possible to use the widget at your blog, in case you want to.
The benefits are clear: gain a larger audience.
I also like the fact that there's no need to send emails out to friends and fans.. It's all automatic.
Each entry will be followed by a mail to your list.

Following are my best scoring entries, the best one at the top.
Click the link and rate at the widget.

Please, please help me gain for autism.

Thanks!!!


workshop: Going to the Heart of Autism

memory

friday's feast



exhibition at school

autism - school - and an invitation of the law


I'm collecting magnifiers now




autism in libraries

inspection of the waterplayground

a cure for autism

saturday 9




three word wednesday - coma

manic monday

heads or tails - gardeningtip

publicising research results

autism awareness and a smile

The oldest and education



I feel caught in the middle between the law and my child.

Scrumptious Sunday - soup



Scrumptious Sunday - Chili

saturday special



Scrumptious Sunday - potatoes










looking for dad serving in the RAF during WW2

the same psychiatrist, oh my dear!

april 29 2008

Talking to other parents with an autistic child is very worthwhile.
With 4 boys with Autism Spectrum Disorder I'm always able to recognise something in the stories of others.

Now I'm being more active in my town people start asking questions or spontaneously start to share their experiences.
Sometimes I know I can help.

Last week I met a woman who told about her autistic son and the psychiatrist they were having troubles with.
I recognised her story and asked carefully if she wanted to tell me the name.
Yep, like I thought, she was complaining about the same person.

Because she had some questions that couldn't be answered at the schoolgate, I was invited over to her home.

I expected to be away from home for a bit over an hour, but I should have taken my pyamas with me.

Her son showed the same behaviour as my autistic son, had exactly the same problems with medication, etc etc.
And, like the psychiatrist reacted to our difficulties, she listened while looking at het watch with intervals of 10 seconds, mumbled about institionalisation and precribed the same meds before opening the door and smiling.

I've sworn to myself that I would jump in whenever I heard the same story about this psychiatrist as ours, and so I did.

When I asked her if she wanted to have her child in an institution, she said she was afraid it would end that way.
Her son even told the psychiatrist the last time that he thought she didn't care about him at all and that he had the idea she wanted to put him in a nuthouse.

That is not what autistic children should deal with!!

So we made a plan to get him better help,
I told her where to go for special assistance at school and how things are organised around the paperwork, and I was strengthened in my feeling that more moms in our town should meet and talk together.

So I'm going to organise a meeting soon.






More entries in autism awareness month:


articles:


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I feel caught in the middle between the law and my child.

april 23 2008

Tomorrow we're going to have a meeting with a representative of the council.
She wants to "hear" is (like in "interrogation") about the fact that my autistic son is not going to school.

He promised to go last monday, but ofcourse he didn't.
The school offered him an emtpy room, and that was it.
No-one waiting for him, telling him what to do.

I'm not even sure someone realised he wasn't there at all.

Well, I've begged him to go, threatened him, gave him a book to read there, etc etc.
I can't pull him on his hair to school.

After the school with the auti-classes didn't admit him against all promisses and after 4 months of waiting, school is a no-go to him.

He can't deal with the social situations, the lack of routine, the different facial expressions, the noises, etc etc.

Homeschooling isn't allowed here.
All children should go to school.
But there's a lack of auticlasses.

I feel caught in the middle between the law and my child.

Tomorrow someone who doesn't know my child will decide if we get a fine or if we're brought to court.

Ofcourse we've made a plan.
First we want to know if the files she has are complete and if she knows he has autism.
The man she took over from intimidated me in my own home. Not much later I found out he didn't even know he was talking about a child with classic autism!

Second: it should be clear that the school did nothing at all to help him.
So they should fine the school, not us.
We complained and did everything else to get the school in motion, so they would provide him what he needs.

Third: the system falls short. He would have gone to school when the auti-class application was granted.
But there aren't enough auticlasses.

Fourth: other help is involved. I have asked the schooladvisor to help us out, and I've even asked for a meeting with the council...and that's granted!

When she fines us or sends us to court, I'll involve the media.

The last days I've felt sad, depressed, angry and a lot more.

Now I'm just very tired, but I hope tomorrow morning I'm ready to make clear that I've done all I could.

Keep your fingers crossed for me, pleasssseee!



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autism in libraries

april 19 2008


Have you ever considered looking through the autism-books at your library?

At the beginning of spring many libraries have a spring cleaning and -filling.

That means that books that are never read and/or are considered old are sold for a low price, and new books are registered and put on the shelves.

The library where I live take suggestions from members, so each year I order a few books.
In the beginning they were hesitant to do so, because they thought it would only cost mony and the books would never been read.
So I urged friends and teachers to ask for the books.

Now I'm asked each year if I have suggestions.

Sure I have!! LOL!

This year I asked him to display a couple of books and information about autism on the special table near the entrance.

Because it's autism awareness month they did.


Maybe you want to take the same action.
It's very worthwhile.




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workshop: Going to the Heart of Autism

april 19 2008

East Lansing, MI
Going to the Heart of Autism (workshop)
June 13-14, 2008 (9:00 am to 4:30 pm)
Instructor: Dr. Steven Gutstein
for: teachers, parents, and everyone else.


Dr. Steven Gutstein, a psychologist, created the RDI (Relationship Development Intervention) program.
He reviewed the scientific literature about autism and he defined 6 core deficits each autistic person shows. These deficits show no improvement with age.


  1. Emotional Referencing.
    That is the ability to learn from the exsperiences of others.
  2. Social Coordination.
    That is the ability to control one's behaviour in such a way that one can engage in spontaneous relationships.
  3. Declarative Language.
    That is the ability to use verbal and non-verbal language to express emotions, share them and coordinate actions with others.
  4. Flexible thinking.
    The ability to adapt to changing circumstances by changing plans, opinions, etc.
  5. Relational Information Processing.
    The ability to extract meaning from a larger context. Like solving problems that have no clearcut solution.
  6. Foresight and Hindsight.
    The ability to use past experiences in a creative way to anticipate on (slightly different) future situations.
All these core deficits have one thing in common: the lack of use of creative/dynamic intelligence.

Most people with autism are very able to use static intelligence. They're good in memorising facts.
But they lack flexibility and the creativity to respond properly to new situations.

RDI makes people more aware of the natural pathways.
It enables people to put normal processes into words and slow them down.
By creating simple settings and well defined behaviourtargets, one creates more succes-experiences and enables to get insight in what a child needs to develop further.

The program uses parents as a means to teach the child.

In the workshop the following areas will be duscussed.

*-Research results on the quality of life for people on the autism spectrum

*-The developmental path unique to people on the spectrum: including the concepts of absolute vs. relative thinking, imperative vs. declarative communications, and more...

*-The basic principles of RDI: Guiding and Pacing, creating an Experience-Sharing communication environment, capturing episodic memories, teaching Functions before Skills, determining developmental readiness, and developing competence

*-The essential elements of a RDI lifestyle

*-Video clips of 'RDI in action' with parents and children and clips from the first two years in the life of a child with autism

*-The importance of frameworks and of the concepts of evolving and modifying frameworks

*-The advantages and the processes of forming dyads and small groups

*-Research on the effectiveness of RDI

*-RDI with teenagers

*-RDI implementation in school settings

I have a problem with the theory of Mr. Gutstein.
He overlooks the fact that autistic children are able to share feelings and emotions.
And not all autistic people have a complete deficit on the 6 areas.

He surpasses this problem in RDI, because it's a highly individualised program.

I like RDI because it's a positive approach.
It makes people aware of the potentials a child has.

Many parents realise that RDI is a more explicit approach of what they do already.

Teaching a child to tie the laces of the shoes works best when the complete action is broken down in parts.
An autistic child not only needs to learn the individual actions.
It also had to learn to synthesise these individual parts, an autistic child also needs to learn that he can tie his laces at school, on the pavement, and can also tie the laces when they are wet.

I think it's a relief for parents to experience the success of the individual steps.
Dealing with an autistic child without having attention for the details is a very distressing experience.



For more information:

http://www.rdiconnect.com/workshops/viewAssessment.asp?wid=145
Brad Andreessen
Email: bandreessen@rdiconnect.com
Phone: (713) 838.1362 x130




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    reminder

    april 19 2008

    Lansing
    Capitol Steps
    11.00 AM - 2.00 PM

    Rally to motivate politicians to pass autism insurance legislation in Michigan.

    I've seen at:
    http://autisminsurancemi.blogspot.com
    that there are a lot of interesting speakers who support this event.

    More information:
    http://autisminsurancemi.blogspot.com
    and:
    http://michiganaction.org (there's a forum)



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    April is autism awareness month.
    This month all my earning
    will go to support of autistic children and their parents.
    So help me win a buzzfuse reward
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    autism awareness and a smile

    april 15 2008

    I haven't been blogging a lot this last week.

    I had too much on my mind, with the application for a school rejected for one of the girls. And some other issues.

    On top of it: I was far less motivated as it looks that people don't care for the buzzfuse element I use and the cause I blog for this month.

    So I turned my energy another way and created two dutch blogs.
    (I'm using the name Holly, to give my children the privacy they deserve. So be careful when you comment.)

    One to improve the situation for autistic children in my hometown.

    And one: "Action for Autism", to enhance awareness, comment on all sorts of situations that aren't right, vent ideas all over the place, motivate other people to take action, etc etc.
    There are two other Action for Autism sites, one in England and one in India.
    Wouldn't it be great to connect international and national initiatives?

    The number of people with an autism spectrum disorder is growing.

    I'm not at all sure we're dealing with disorders here. Not in all cases.
    Many of these people have strong and weak characteristics, like us all.

    Their weakness is defined in the areas of communication and socialisation.
    They have a different way of perceiving and processing information, so they have difficulty dealing with the way information is handled at schools.
    But a growing number mean we are getting more children with a disorder, or does it mean it's time we change the way our society works and the way schools are aimed at the average student.

    Maybe we should even start to reconsider our way of thinking about other human beings.

    I've found many people tell me autistic people are not contributing to society.
    Hmm...
    They sure have made me feel more accepting about people who want to be or are unique(including myself).
    Do we give people who are different enough opportunities to be themselves?

    Does a higher level of education really mean that the person is better, more contributing, more valuable?

    I was at the school of the girls yesterday.
    All the pupils crowded the halls and classrooms.
    Some were talking about the latest fashion, showing off their shoes.
    Others were talking about the traffic exam taking place this week, and some boasted about the school they were admitted at.

    Slowly it got more silent.
    Doors closed and the corridors were empty.

    Then a teacher stepped out of the classroom and shouted a name.
    "I'm coming", I heard.

    A boy walked my way.
    "I hope she didn't shout too hard for you.
    I'm autistic and I'm always late.
    People say I'm too slow for this world."

    He gave me a bright smile.
    "You're the mom of the twins, aren't you?
    Your boys are autistic too, so you know what people say."

    "Yea, I sure do.
    But I also know something else.
    You're doing the best you can.
    Last year you didn't dare to look at me, let alone speak with me.
    Boy, you have the brightest smile I've ever seen,
    and you've warmed my heart.

    No one did that today.
    No teacher, no child.

    You just cherish that gift of making people happy,
    and keep your smile ready for people who want to see it.

    Many people forget to smile.
    Tell you teacher and your mom you took the time to make someone happy with your smile."

    He went to the classroom and I went with him. Told his teacher we had a very important chat and that he wasn't late at all.
    He just took the time for something that was very important.

    I don't care what that teacher thought.
    But on my way home I was singing on my bycicle.




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    The oldest and education

    April 15 2008

    The oldest finally got the letter of admittance to a special school which fits his educational needs.

    He's got asperger syndrome and ADD and we feel this is really a new start.

    When he was young he was considered shy and clumsy.
    He walked in a strange way, but apart from telling us he needed fysio, no one thought a bit more about it.

    When he went to school he didn't socialise much and seemed to be in his own phantasy world.
    At times teachers made a remark, but immediately told us it was not allarming.

    When we went for check-ups we were told not to worry so much.

    It's almost the classical story.

    At college he was told to work more and more organised.
    He was called lazy.
    Far too often.

    Even when we went to see a childneurologist (now a professor) we were told not to worry.
    He scanned him, had a psychologist have a look and told us all was fine.
    He wouldn't be very social, but the world florished with scientists, and he sure had all the intelligence to become one.
    Maybe one in the computer area, as he had a large interest in laptop computers.

    Well, he became a computerfreak, but school didn't went well, and he was never able to finish a year, because he simply wasn't able to live up to the expectations.

    Then he dropped out of school, and became even more of a computerfreak.

    But where to skip all the normal schoolrequirements and get a specialised education?

    It took more than a year to get him diagnosed and years to find someone who knew the ins and outs of the whole world of disability income and education.

    He's now moved to a trainingshouse, and can start at a special school within two weeks.


    Some people don't understand why it took so long.
    Well, when you told professionals 23 years ago that you thought your child had asperger syndrome, you were told you were nuts yourself.
    Not in so many words, but they all said I was wrong.
    The consequence was that he got all the support he needed from home. But a mom can interfere with school and others areas of life only so much.
    So he didn't get all the support he needed untill the knowledge and awareness about asperger syndrome and ADD was more widespread.






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    ASD, melatonin and sleep

    april 9 2008

    Many children with autism spectrum disorder and ADHD have problems sleeping.
    Most of them can't find enough relaxation to fall asleep.

    Traditional sleeping assistants, like hot milk, a lavender pillow and such, don't help.
    Interesting is that also the firm sleeping medication a doctor can prescribe often is of no use at all.

    When I first was told melatonin would do the trick, I smiled politely, started reading and then tried it.

    It works!!

    We give melatonin about one hour before we want the child to fall asleep.

    All it does is tell the brain it's time to sleep. It gives a certain relaxation, so when a child lies down and relaxes it falls asleep.
    It's not a sleepingbomb.
    When a child stays behind the computer, or is bussy watching a stressfull movie it doesn't do anything.

    Melatonin can be bought at the pharmacy, but the pills can also be bought on internet and many other shops.

    Be careful!
    You want to pay for the melatonin, not for chalk or any other carrier stuff. So get the melatonin as pure as possible.


    Other articles about autism spectrum disorder:

    a cure for autism
    Who diagnoses autism and how





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    Who diagnoses autism and how.

    april 6 2008

    A diagnosis of autism has a lot of implications for a child and its parents.

    Some people claim to be able to "see" if a child is autistic.

    Autism though can be easily mixed up with other developmental or communication problems, so an expert needs always to be involved.

    So it's not up to a schoolteacher, nor to the family physician to make the diagnosis.

    Because autism is a neurobiological disorder defined in the DSM, the Diagnostic and Statistical Manual of Mental Disorders, a psychiatrist is the expert one needs.
    Not all psychiatrists however are trained to deal with children, so one should look for a child and developmental psychiatrist. If possible one who is wellknown for accurate diagnoses of autism spectrum disorders.

    Some people think it's not very important that a well defined diagnosis is made for a young child.
    They say young children change a lot and maybe these children even outgrow their diagnosis.
    As I wrote before: autism is a disorder for life.

    A carefull diagnosis is important, because the treatment of a child depends on it, and which means that the development of the child depends on it.

    In some states children with PDD-NOS won't get proper treatment, because PDD-NOS is considered of less influence on the child's life than for instance classical autism.
    So even experts are inclined to diagnose a child with classical autism, to get help for the family.
    It's a disgrace that policy-makers don't know enough to make proper decisions about the help children should get. Or that they won't trust experts.


    I've had some questions from parents about the time the diagnosic process costs.

    Each diagnostic process should include:

    • an anamnesis, that's a family history. It's important to know which illnesses and disorders are in the family, because some might point in a certain direction, or might be overlooked at a young age.
    • the history of the child. Some disorders lead to the same symptoms as autism, but are not autism at all.
    • the experiences of the parents. Parents see their child develop from day to day. They know their child as no one else.
    • the observations of teachers and others. Sometimes familymembers or friends see things the parents are not able to see.
    • questionnaires. They're very helpfull to discuss each and every subject that's needed to pick up signals. People can remember active, but also by recognition. These list are great for that.
    • observation. Expert observation of the child is always important. It's up to the expert where he likes to see a child. Some are OK with a classroom, others prefer playtherapy or videos at the family home.

    Some experts also want a physical exam, bloodwork and even scans.
    That's because they want to excluse other issues before making a clear statement about autism.



    I'll write about the symptoms of autism at another time.



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    A cure for autism

    april 4 2008

    There are lots of misunderstandings about autism.

    One of them is that autism can be cured.

    Ofcourse I've read the sensational stories of parents who have been able to give their child a special therapy for quite some time and at the end they have cured the child.

    I'm always very happy for the parents and the child.
    There's nothing more fullfilling than being able to change a child into the image you want.
    And we all want perfect children with just that little added imperfection that makes life fun.

    As a psychologist and scientist I always want to know more.
    Was the child really autistic?
    Who diagnosed the child? How? When? Where? Needing how much time?
    Wo were involved in the diagnosis? What was their training and experience? Etc etc.
    What was the baseline of the child's development when the "therapy" started?
    How was the development defined? Which areas of development were involved?
    What's the description of the therapy, can anyone use it?
    Etc etc.

    Just claiming that a special approach helped a child might create the image of a miracle,
    but even a real miracle needs clear definition, description, measurements and evaluations by experts.

    Autistiform behaviour, that's behaviour that looks like it's autistic, can be the result of numerous conditions.
    For example:
    Children might engage in less social behaviour when they suffer certain forms of braintrauma.
    And children who are neglected seem to be unable to communicate and reach out. They become apathic and turn inside themselves.
    And some children with a fungusinfection in their throat stop talking and try to escape from social interaction so they won't be forced to talk and suffer pain.

    Most of these children will communicate better in time with proper attention and good care.

    But these children were not autistic.

    Autism is a neuro-biological developmental disorder.
    No cause has been identified yet.
    The last years some theories have been formulated, but researchers are still trying to find enough evidence to confirm these theories.

    When the causes can be formulated it will be easier to find therapies to influence the problems that are caused by autism.

    Many parents and therapists are trying different approaches to influence the behaviour of their children.
    But even when some children can be influenced in such a way that they behave almost normal, compared to other children of their age, they're not cured.

    It's like diabetes. One can influence glucose and insulin levels with diet, medication and spending energy, it doesn't cure the disease.

    Someone with autism will always perceive the world in a different way, because information is processed in a different way in the brain.

    All people with autism are different.
    That's why one can't say that when one approach works for one person it's also successfull for someone else.

    We can try to create an environment which triggers less problems for autistic children.
    We can use medication to make children less susceptible for triggers that cause problems, or which make children display less problembehaviour.
    We can use behavioral training and other therapies to condition children to behave the way we want them to behave.

    But there is no cure to take autism away.

    I remember telling a teacher that we can't take autism out of a child, but we can take autism out of our minds.
    By accepting the child is unique, and by assisting the child in all areas where support is needed, we can create the best conditions for development.

    In our society children are judged in so many ways.
    They need to be normal.

    Well, autistic children are special.

    Maybe we all should be cured from the idea that the average way of development, and that the standard way of behaviour is best.

    Autistic people are individuals.

    We all will be a lot happier when we start to accept this.






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    Laane is a psychologist (1986) who's specialised in autism spectrum disorders.
    She fights for the rights of people with autism and autism spectrum disorder to recieve education which fits their needs in a social environment which is safe, supporting and nourishing.
    She's the founder of "Psychiatry - Individual - Education", an organisation which is aimed to improve the position of people with a psychiatric disorder in schools and other educational environments.

    4 of her 6 children are diagnosed with autism spectrum disorder (classical autism, Asperger syndrome, PDD-NOS).

    autism - school - and an invitation of the law

    april 2 2008

    Waking up was a kind of surprise.
    It has been ages ago that I slept more than 4 hours. Wow!

    Ofcourse the whole family needed to shower at the same time.
    Leaving me 5 minutes.
    Well, I was downstairs on time, at the meeting on time... without feeling any stress.
    What a bit of flu can do. LOL!

    This time the schooldirector himself took the lead, which made the meeting far more quiet and to the point.
    I had one item on my agenda: making clear that I want no talking behind my back, because it leads to people wanting to save their face and reputation at the cost of the children and the parents.

    Right after his opening sentences and a sip of coffee I had the chance to jump in and say my bit, with the example I wanted to give. (I can't give it here for privacy reasons).
    It set things straight within seconds, so we could start talking about the future of my autistic son.

    Ofcourse they wanted him to come back to school.
    And ofcourse they wanted to make adjustments.

    But they made them a year ago already, and it didn't work.
    It's not about the amount of hours spend at school, it's about the amount of requested social interaction.

    Right at that moment a group of girls has a lot of fun, just in front of the window.
    They giggled a lot, talked with high voices, even we had to smile.

    Perfect to explain how some children with autism experience walking to the schooldoor.
    So many noises, movements, lights... and they make no real sense...
    It takes effort to complete an understandable picture, but there is no time, because new sensory stimuli draw the attention, kids that talk, sounds of the schoolhall...

    The schooldirector gave the impression he understood a bit.

    When a normal classroom wasn't an option, maybe he could study at an empty room.
    He can do that at home...

    So the focus of attention shifted to choosing another school.
    They had no new options... the schooladvisor has given them all last month.

    So we agreed that he won't finish his final exam, but will stay subscribed at school, just to do what the law wants.
    The schooldirector said he couldn't unscribe my son, but he can. And I told him so. But subscribing would mean an investigation from the schoolinspection, and that's what they don't want.

    Almost at the end of the meeting it turned out that it was not the initiative from school to invite us, but the council's wish.

    Thought so!!

    It's the law that all children have to attend school, and there are only a few exceptions.
    Homeschooling isn't allowed here.
    Nor is staying at home.

    But there aren't enough places for children with autism.
    That's why my son had to struggle so hard the past years.
    He had to go to a normal school, with almost no support.

    He was promised a place at an auti-class, but wasn't accepted the last minute.
    Going back to the normal school isn't an option anymore.

    So if they want to bring me to court.... so be it.

    At home I found an envelope... with the invitation to be heard by a representative of the council.
    A year ago I would have been stressed out.

    Now I could only smile.

    I don't care she mentioned the numbers of the passages of law.

    I don't even care to be questioned.

    My child is autistic and can't cope with the schoolsystem.
    There are special faciolities for autistic children and he was referred to them.
    But there aren't enough auti-classes available.

    I haven't created the problem, nor has my son.
    Society falls short.

    According to the human rights I should be able to choose the education which is best for my child.
    I've choosen.
    They can't deliver.

    I'm not the only one confronted with this problem. Not at all.
    This year about 50 children with autism won't be able to find a place at an auti-class.

    Which means I would be able to start an auti-school, when I had the money and the support.

    I have promised myself that when I will be brought to court I will use all media, all magazines, to make people understand why children like my son can't survive at a normal school.
    I will use all means to make clear in court that it's the duty of the government to create the school he and other autistic children need.

    Ofcourse I'm trying to convince people now.
    I'm not waiting untill then.
    But when there's the excitement of a mother of an autisic boy being brought to court, the media will jump on it.

    So for now I'm waiting for new developments.

    How does the lady of the council react to the report of the meeting of this morning?

    I'll let you know.


    And now I'm off to nurse those who are still ill here. (You see, moms can't be ill themselves.)
    Everything else has to wait untill tomorrow.





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    autism awareness month

    april 1 2008

    April is autism awareness month.

    I will try to post at least every other day about an aspect of autism.

    Parents of autistic children probably will recognise many sketched situations with a smile or a tear.

    It's unbelievable how many parents all around the world are fighting to give their children all the support they need, all the love and much much more.

    You can leave your link here, so I can make a list of all the post you have written about autism.

    Feel welcome to ask your question!

    You can come back here to find the latest additions.



    articles:

    The Second Annual Autism Information Fair - White Plains

    march 11 2008

    The Second Annual Autism Information Fair

    Sunday April 6th from 11 am to 4 pm
    at the Westchester County Center
    198 Central Avenue -
    White Plains , NY

    Sponsored by the Navigating the Spectrum and The Westchester County Department of Community Mental Health.

    Parents, therapists, educators, health care professionals, school administrators and anyone who cares about a child on the spectrum are invited to join us for a day of education and empowerment.
    Connect with families affected by ASDs and network with knowledgeable and encouraging professionals. Learn about Interventions and Services available for all ages, from toddlers to adults.

    Visit Over 40 Scheduled Information Stations Including
    Applied Behavior Analysis - Relationship Development Intervention - DIR and Floortime - TEACCH - Occupational Therapy & Sensory Integration - Speech & Language Pathology - Physical Therapy - Medical Interventions - Nutritional & Biomedical Interventions - Special Education Law & Advocacy and lots and lots more.

    Breakout Lecture Schedule:

    Toddlers and Preschoolers: 11:30 - 12:30
    School Age Children: 1:00 - 2:00
    Adolescents & Young Adults: 2:30 – 3:30


    FREE ADMISSION - FAMILIES WELCOME - FUN & ATTRACTIONS FOR CHILDREN - BOUNCERS - BALL POOL - BIG APPLE CIRCUS CLOWNS

    Navigating the Spectrum - http://www.navigatingthespectrum.org
    info@navigatingthespectrum.org - 914-826-5300

    Current Trends In Autism 2008 Conference

    march 5 2008

    Current Trends In Autism 2008 conference

    April 11 and 12

    Boston Marriott Burlington


    At the conference the most up to date, scientifically sound information in the field of Autism and Pervasive Developmental Disorders will be presented to parents and professionals.

    Knowledge on the area of Autism Spectrum Disorders is developing fast and the latest will be presented at the conference.

    All proceeds from the conference will be used to finance new and ongoing neurobiologic research and to support ongoing evaluation and treatment services and the development of new interventional programs at LADDERS.

    You can now register online ::here::

    For more information you can go to ::this pdf file::

    PDD-NOS

    march 4 2008

    Had a meeting with the psychiatrist of my second son this morning.

    Not all test are done yet but the conclusion is already very clear: PDD-NOS.

    So that's official now.

    He needs one day of tests to have enough data to refer him to a special school for individual education.

    He wants to become a photographer and he hoped that he gets a chance to learn the profession from a photographer himself. He's just not able to sit in a classroom.

    Right now he's making a lot of videos. With sound and all.
    What others learn at school he has taught himself.

    One of the bands which performs regularly here in town has found out about his work and they requested 6 months ago to have their performance taped.
    He did and they were so happy with it that he's asked again for next month.

    Let's hope he meets someone who wants to teach him everything without the troubles of school.

    AUTISM ONE 2008 CONFERENCE

    march 3 2008


    AUTISM ONE 2008 CONFERENCE (the sixth)
    Chicago, Illinois
    Pre-Conference: Wednesday, May 21 – Thursday, May 22
    Main Conference: Friday, May 23 – Sunday, May 25

    Subjects

    1. Biomedical Treatments
    2. Behavior and Education Therapies
    3. Complementary and Alternative Medicine
    4. Adolescence and Adulthood
    5. Government and Legal Issues

    You can sign up for a Mentor Mom who will help you 24/7, get detailed answers in the workshops, sample, and get the recipes of special diets in the hotel restaurant, take advanced parent training classes, and participate in the Arts Festival classes.

    NEW FOR 2008

    - Seminar with Amy Yasko, PhD - Interpreting Lab Tests Seminar
    - Thai Cooking as part of Special Diets
    - News Desk with In-Depth Analysis
    - Defeat Autism Now! Cli! nician Seminar - Advanced Parent Training

    our special attention for:

    Pre-Conference: Wednesday, May 21 – Thursday, May 22

    EMPOWERMENT FROM EDUCATION Some topics require hands-on, day-long training. The Pre-Conference Days are rich in practical purpose and presented in a manner to quickly bring you the knowledge to help your child immediately.

    Wednesday, May 21. The Art of Special Diets. Preparing and cooking special diets was never so easy and delicious. Good food is the first foundation of recovery.

    Thursday, May 22. Defeat Autism Now! Clinician Seminar. Learn the science and join the movement of practitioners who are effectively treating autism.

    Thursday, May 22. First Responders – Law enforcement officials learn how to effectively spot and safely deal with situations involving individuals with autism.

    Thursday, May 22. Law Day. Everything IEP. Become your child's most effective education advocate.

    Thursday, May 22. What to do when a child won't eat: Feeding Disorder! s and Developmental Delays.

    Learn more at http://www.AutismOne.org or
    email info@autismone.org or
    email or call Ed at 714.680.0792.

    Autism One is a parent-driven, charity organization helping children and families with autism.