may 3 2008
It was early. Far too early for a saturday.
The girls were almost ready to go for a day at the swimmingpool.
Their father was supposed to accompany them... and he was not ready.
He forgot to tie one shoe, and his mind hopped from one thing to another.
So I had to lead them all out!
Tell the girls to take their bags, food, drink.
Did they have the bathingsuits? Towel?
Did dad tie his shoelace by now?
Etc etc.
Then my autistic son came down, telling me he needed his meds.
So I took one of his pills, gave one of the girls paper handkerchiefs, told one of the other boys his alarm was going off, and...did he tie his shoelaces?
In the kitchen someone was able to get her arm just ahead of me, grasping a bag of bread, I was asked what we were going to eat for dinner.
I grasped a mug, put water in it, got another question, saw that the shoelace still wasn't tied and swallowed the pill.
Two dark eyes stared at me.
"You took my pill."
They all went silent.
Finally!
So I ordered the girls out,
told their father to go on behaving like an attention-hungry child and just drop face flat on the gardenpath over the untied shoe,
told the boy who relies on the alarm to warn ma to warn him that he'd better silence the thing and have a shower and calmly told my autistic son that mom's never do a thing like that and that it was a joke.
He got his pill and went upstairs.
I quickly looked up the interactions with others meds and found out the pill is bad for diabetics.
Great, I'm one.
I took notice of the other side-effects, which didn't occur in my system (yet), because I'm still alive.
It's more that 12 hours ago now.
My arm was hurting this morning and it still does.
I haven't become more social, the effect the pill has on my son.
The only effect the pill had is that I feel silly.......
I took my son's meds
Alcohol rehab
april 25 2008
This evening I saw an interesting program about an alcohol rehab.
They were supposed to give group therapy, but in fact it was a combination of individual and group therapy and unsupervised time.
I've worked a while at an alcohol rehab facility and I was amazed by the way these people were treated, and by the fact that there was no one at the facility to deal with the people for long times on end.
The program gave me the idea that the therapist thought himself to be more important than his client. And I certainly didn't like the game he was playing.
Making a client dependent and handing out compliments when this dependence is the center of the talk is certainly not my way of dealing with clients. Ugh!
At Cliffside Malibu they also have an alcohol rehab.
I think that should be brought on TV. I guess it won't, because they respect the privacy of their clients far too much.
They offer a program that is thought through well, based on scientific research and experience, and puts the client in the centre of attention.
Well worth to look into when you need assistance and support for any addiction.
publicising research results
april 21 2008
I've been surfing around a bit and I've found quite a lot of blogs which have no real original content.
Some are just copies of the news in a different layout or summaries of scientific articles they have found somewhere.
Or second hand schientific results.
Just getting statistics doesn't say much.
Especially not when they're taken from the news.
There are so many fairytales around, which aren't backed up with proper research or are based on bad research.
It takes some basic knowledge to judge a scientific article, and it takes the whole article.
It's not enough to see the results.
One should be able to see why a certain research method has been choosen, and if it fits the subject, the hypothesis and the researched group(s).
One should be able to judge the statistical method. Some methods are choosen to draw conclusions from the data which shouldn't be used at all!
And one should be able to criticise the way the researchers have reached their conclusion.
Sometimes the data available grant more conclusions than one.
It's important to see them.
I know that many scientists need to publicise on a regular basis, otherwise their researchgroup looses grants and/or is not accepted in the researchinstitute anymore.
Many scientists need to publicise a certain amount of articles a year, to keep their job and/or be promoted.
The pressure to write articles and seek the media is sometimes too much.
A bit of inside information about that sometimes prevents misunderstandings and false joy.
For instance:
In the past the scientific community ignored certain cancerresearch.
We knew where it came from, so we didn't spread any false hope, and quietly tried to make the scientists aware of our doubt about the conclusions.
Then the media got hold of the results and spread false hope among people.
It took ages before it all died down, and so many patients were hurt, because there was no cure.
Another important hype was created about vaccinations and autism.
The article was withdrawn and excuses were made to the scientific community.
But even today many parents think they have given their children autism because they had them vaccinated.
They are not open anymore to scientific results that show there is no correlation.
To the contrary, they jump on everyone who says there is a connection and use it to show they are right.
Selective perception, see what you have in your frame of mind, is even more dangerous than pure phantasy.
More and more scientists are aware of the people who need the results of their reserach.
It leads to more ethical behaviour.
But even when clear statements are made that certain results are just the first step in a long chain of researchprojects, people just take one part out of what they hear: the part they think they can use.
Being aware that writing about research results might cause reactions on the side of the readers which can't be controlled is not often a characteristic of the media.
I hope more bloggers however take a close look to why they re-publisice what they find in the media.
April is autism awareness month.
This month all my earning
will go to support of autistic children and their parents.
So help me win a buzzfuse reward
and rate this article with a free click.
To be completely sure your rating is counted
you can subscribe free.
(And unsubscribe if you feel you want to.)
.
AeroCare
march 8 2008
One part of the final exams of my boys is writing an extensive paper on the subject of their choice.
For one of my boys choosing a subject was no problem at all: he wants to be part of an air ambulance team.
A few years ago, to be precise: at august 24 2006 he heard about the first revenue air ambulance flight from Scottsdale, ans since then he knows for sure that he will be either an air ambulance pilot or a nurse.
Last month he decided that he will opt for becoming an air ambulance pilot.
The AeroCare air ambulance staff is still his inspiration.
The AeroCare Air Ambulance Service provides services throughout the world.
They're available 24 hours a day for emergency and and non-emergency ambulance services.
AeroCare uses the most advanced systems of patient care.
Which means that AeroCars is able to provide and ICU environment with all necessary equipment to bring the patient high quality care on long and short distances.
They experience enables the most cost effective help.
All members of the flight crew, medical team and management team are well trained professionals, so no time is lost where each minute counts.
They're specialists in transporting the most critically ill patients.
Some of the aircrafts have enough space for the patient, a medical team and three family members. Which means that far more can be gained from air transport than time alone.
AeroCare Air Ambulance Service is completely equiped to save lives.
Our philosophy is to provide out patients with the highest level of aero medical care including medivac services at the most cost effective price.
This commitment to quality and cost effectiveness is delivered by combining the talents of our highly trained medical flight crews, our safety and service oriented Flight Crews, and a quality driven management team dedicated to treating each of our patients as if they were members of our own family. he
UltraPMS.com links fibromyalgia to high levels of homocysteine
january 26 2008
Some people suggested last week that the pain, stiffness and fatique I was and am experiencing might be fibromyalgia.
It's possible, although I've been tested for rheumatic conditions quite some times the last 10 years. The bloodtests never showed any results that pointed towards a rheumatic condition.
My aunt is suffering from rheumaticism tremendously, so I'm always alert.
UltraPMS.com links fibromyalgia to high levels of homocysteine.
This is interesting.
Long, long ago I was diagnosed with the hightest levels of homocysteine at that time.
Ever since I take my pills each day.
It started out with high dosages, but in the years they got smaller, up to a level that was under what I took before I was diagnosed.
So maybe I'm going through a time of high values again.
Well, I know what I'm going to do. Maybe taking a higher dosage for a couple of days will help.
Tomorrow is my birthday... I can do without pain....
to the doc
november 2 2007
I went to the doc with my second son.
He had been to hospital for a lungcheck and an allergy test.
To our surprise our own doc wasn't available.
The new doc had a look at the data and told him he was seriously allergic to a lot of things, mentioned 2 and told him he would get drops for his eyes and a spray for his nose, and wanted to give him a hand.
It all went as fast as I write it down now. Ugh!!
I asked her what she was going to do about his lungs.
She was surprised by the question. Maybe even amazed that I dared to speak.
What about his lungs?
"Well, in hospital we were told the family doc would tell us he needs to deal with his asthma well."
"Oh?", she said, and bowed so much forward to the computer that I'm sure she needs glasses, even has them, but doesn't want to wear them.
"Has he breathed in a little machine yet".
"You can see in the hospitalreport that he has had all the tests. We're here so he can get his meds."
"Oh.
Well I want to start with his eyes and nose first.
Then he can come back in two weeks and we'll see then."
"Oh no! We've been there.
We agreed with the doc he would start proper treatment. Not only for his allergies, but for the asthma too."
"Well he needs a large thing to breathe through, then."
"Why? So far he has taken my discuss ventolin when he had difficulties breathing. All with the knowledge of the doc.
He's 18 so he should be able to control his emotions when he as an asthma attack, and use the inhalater properly. And he does.
I now want him to have his own meds, so we can both keep track of how much we use."
"Well, I can understand you're irritated."
"?? I'm not irritated. I'm just aware that not everything is written in the computer, and I have to update you and make clear what we and the other doc agreed on.
We have been to hospital to get a clear diagnosis, so we were sure we would be medicating the right problem with the right meds."
"OK... I'll mail to the pharmacy and you can get them at the end of the day or tomorrow."
We got a hand and we were outside again.
Next time I'll make sure our own doc is available.
She didn't even ask how he felt about the diagnosis.
Well, in fact she didn't even give it.
***sigh***
NMS Neuromuscular Support
november 1 2007
Like I said last week: pain is a killer.
I'm not only talking about the pains of PMS that bother many women every monts, but also chronic low back pain, muscle strain, arthritis, sports injuries and ofcourse the troubles that come along with normal everyday bumps and bruises.
I've found something that helps. It even reduces the pain and inflammation associated with chronic joint discomfort.
I don't know how it works.
All I know that each of the ingredients are able to reduce inflammation and pain, and some of them combined work even better.
It's called NMS Neuromuscular Support. It's a fast acting completely natural nutritional formula.
When you're living in the UAS and want to give it a try as PMS relief, muscle strain relief or because of other reasons, you can send an email to support@naturalformulations.net.
Put in the subjectline: Free Samples.
And include the following information: Name, Address, City, State, Phone number, useable email address and where you heard or saw information about this product.
Plastic Surgery in the UK
october 29 2007
I'm going to "talk" about UK Plastic Surgery.
This morning I've found out that there is a huge difference between Plastic Surgery in the UK and here in The Netherlands.
Here in The Netherlands doctors are allowed to refuse surgery when they consider it not necessary. The oath says they have to heal and cure. And some plastic surgeons don't think procedures like tummy tucks, and liposuction are part of their work.
In the UK the decision is all up to the client/patient.
The Plastic Surgeon is a professional advisor, but that's it. When you want something done, you'll get it done.
I've seen a good article about the subject the times at women.timesonline.co.uk/tol/life_and_style/women/diet_and_fitness/article2472511.ece.
The way people view thmselves is for a large part dictated by the modern fashion industry.
In the past voluptuous women were s sigh of wealth (there was enough to eat), not slim women are the norm.
I've heard a psychologist complain that she got many young girls and young women in therapy because they had a distorted body image.
"Food for the cosmetic industry", she called them.
It worries me that there's so much money involved that you have to be careful with each step you move into the direction of plastic surgery.
I'm not talking about victims of fires and accidents, but I talk about healthy individual people, who want to give up their appearance to look like a magazine woman who is or is not corrected by Paint Shop Pro, so she has a flat tummy, endless thin pencillegs and a straight short nose... Oh.. and no hips!
It bothers me that about anyone can give advice whether or not to have plastic surgery.
Some or rebuilt human beings themselves, others are psychologically and verbally well developed nurses who know how to make you insecure and then offer the solution: surgery.
At least before you go to an appointment you can look up if your advisor as the proper registrations. He/she should be registered with the General Medical Council (www.gmc-uk.org) and he should have specialised at university. So he has to have
"FRCS Plast" added to the name.
The best surgeons are member of the British Association of Aesthetic Plastic Surgeons (www.baaps.org.uk) or the British Association of Plastic, Reconstructive and Aesthetic Surgeons (www.bapras.org.uk).
Some people forget that all surgery, even minor surgery has a risk.
One never knows beforehand if the scar will heal nicely and disappear after a while, or will start growing and build up more scartissue, or will stay red or shining silver forever.
Do you know that some people need to have new surgery 5 times just to cover the problems that weren't there in the first place?
OK, surgery seems to be an instant solution for a problem that needs sweat and tears for a rather long time. But often ecercise and diet will do the trick. Hej, the problem didn't appear overnight did it? So at least you should give it an equal chance to disappear when you work out well.
As a psychologist I'm always interested in the reasons why people want to change their bodyimage. Is it to please others? Is it to be able to live up to the expectations of others? Does a little fat here and there really change a life?
I think it's a disgrace that young people are allowed surgery at a time in their life that they're not even completely developed or haven't a proper idea of their own identity.
Surgery is done at places they're not even able to see themselves without mirror, just because the media have made them insecure.
When entering a clinic for cosmetic surgery you have to keep in mind that the people there are very willing to make money from your problems.
Are you an easy target? Why aren't they working in a hospital to give disfigured people a better chance of a pleasant life?
Ofcourse I can't stop you. I won't.
But at least ask yourself a lot of critical questions.
people change during life and it's not about how people look, but about the love they're able to radiate.
Do you want someone who likes your body or do you want a partner that loves you as a person?
But even when you have real problems that can be solved with plastic surgery you have to be careful.
Get a second opinion.
Don't book surgery immediately, but give yourself a week, two weeks to think about properly. Some advisors are booking your surgery as fast that you can't even consider their advice.
Ask about aftercare.
Ask about complications. How many in other patiens overall, and how many in patients that have undergone about the same procedure?
Compare clinics, compare doctors. Talk with others who already underwent the procedure.
When you undress in front of someone who pokes in places where you think you're fat, who looks at you from a reconstructioners eye, you have to be sure that surgery is what you want.
The review of some clinics in the Times was interesting to read.
The journalist didn't expect that she would feel so different just because other people were talking about her body in a way she never thought of it before.
She got insecure just from undressing and people wanting to change her.
Only one surgeon (at MYA/Make yourself Amazing cosmetic surgery) was honest to the journalist. Isn't that interesting.
but it's my opinion.
back from the psychiatrist
october 23 2007
They're back from the psychiatrist of my son with ADHD.
She took the effort to take his bloodpressure and his weight.
120/80 and 67.
The medication hasn't changed.
So it's Ritalin with all the rebound effects.
Meds like strattera and concerta are too expensive.
We've been waiting to get him into behavioural therapy.
Mainly to make him get more influence on his impulsive behaviour.
We've watched the mail for nothing.
She forgot to apply!
That's the second time this last months a female psychiatrist there forgets to work on the agreements made during a consultation.
cerebral palsy conference in Detroit.
september 8 2007
The United Cerebral Palsy of Metropolitan Detroit is organising a conference and expo at October 8, 2007 with the title:
"Life without Limits through Assistive Technology"
UCP/Detroit provides information and referral services, employment program (Benefits Planning, Assistance and Outreach Project), individual and family support services (Advocacy, Everyone Together and Parent Coaltion), community inclusion and independent living supports and community education.
They stand close to the people so the conference will be well worth a visit.
Among the subjects:
- Working through AT Issues;
- Obtaining AT for Adults;
- Obtaining AT for Kids and
- Employment and AT. Y
You can access the full conference brochure and download the registration form/register on line at www.ucpdetroit.org or call (248)557-5070 between 9 a.m. and 4 p.m. to request the registration form.
Registration is a MUST.
- FREE to people with disabilities and family members.
- $35 for non-profits $50 for all others.
Register now so you won't have to deal with the deadline.
Attention Disorders
september 8 2007
Having two children with different types of attention disorder I always value good oversights and explanations.
I've found a site that give a good overview here.
In the sideline the discussion is mentioned between professionals that state that attention disorders are just the natural differences between people and the professionals that ADHD is a biological/neurological disorder.
My oldest has got ADD.
It's often said it's ADHD without the hyperactivity.
Forget it!
It's a complete different disorder.
He can focus when he's able to control the input to his brain. So he can play a computergame, read a book, and watch a movie.
But oh my dear when you distract him.
It means you'll pull him out if his selfmade prison and expose him to far too many influences.
He can stay kind and listening, but when you ask him what you have said he will use all he has to escape from giving an answer.
He just doesn't remember.
Either because his mind is clinging to what he was doing in a desperate attempt not to forget what he was doing, or because he can't make a choice between impulses.
He needs to focus his mind a 102% to puzzle all the impulses into meaningful information.
My ADHD son can do many things at once.
He's not paying attention during conversation it seems but when you ask him he will convery the message loud and clear...only you will have the job to choose between a lot of information he just pours out over you.
When you were telling him a story life was not on halt. A fly was flying to the window and landed just a cm under the curtain, there was a faint smell of the lemon in the ktichen and the neighbour started his car.
There two are not opposites on a line...they're different. Completely different.
LensCatalogue.co.uk for all your wishes
september 6 2007
Most people experience a change in eyesight when aging.
At first I wasn't happy at all: I needed readingglasses.
But now I'm 4 years older I don't need them anymore.
So I only wear glasses for normal use.
I would love to have contactlenses, but up untill now they have been far too expensive.
Not anymore.
Melanie, a friend, discovered LensCatalogue.co.uk.
They enabled her to save up to 70% off retail lens prices, which brings the prize within my budget too.
And their shippingprizes are marvellous. Packing & Post is £2.95 and in september all orders over £60 GBP go without Packing and Postcosts.
They have about all the contact lenses that are available.
Great brands like Bausch and Lomb, Ciba Vision (you know: Durasoft), Acuvue, Foocus and Cooper Vision.
And all sorts of types, including daily disposables, bifocal, toric and... colored and tinted.
Makes me wonder if I want an extra pair for halloween. LOL!
I'm very impressed by the list of accessories.
For those who use them: they have Thera Tears, nutrition for dry eyes, for just £7.25 for 90 capsules, and dry eye treatment.
The list also shows prescription swimming goggles that the shop here in the shoppingmall doesn't even offer, a magni pen and an eye pressure monitor.
And that's just a small grip out of a long list.
Well, I told you they have about everything the contact lens bussiness has to offer.
And did I mention free delivery over £60 in September?
I like the fact that I can order online. No need to go to the shop and come back a couple of days later. Just order and you have it delivered at your door in no time.
As an additional service the time spend on the site reordering is diminished due to a special login system.
I'm so grateful Melanie told me about LensCatalogue.co.uk.
all too is too much - cholesterol, statines and cancer
july 24 2007
A few years now I'm in a friendly debate with my doctor.
Coming of a family with all people die from cancer on both sides, I'm very aware something must be in my genes that makes me more susceptible than others.
I've always had very low cholesterol and was praised by the doctors.
I assumed it was a lack of something, as I valued french fries, whipped cream and other cholesterol boosting stuff in more than average amounts without gaining a single gram.
I was 56 kilo when I got diabetes and soon after I gained weight like a freighter is loaded.
My cholesterol stayed down.
Then I got the medication. My glucose had to be kept down, and as a sandwich already made it rise sky high there was no escape.
My cholesterol raised when my glucose levels dropped.
So I got statines.
I tried several kinds. Some made mee feel pain in, as it seemed, almost every muscle of my body, some made me dizzy and others made me loosse control over my movement.
I sticked with the last one. I take a quarter of the prescribed dosage, which keeps the cholesterollevel just below maximum.
Researchers in Boston now came up with the conclusion of a reviewstudy of 13 trials with 40,000 people.
(So they didn't conduct the studies themselves)
The concluded there's one cancercase more per 1,000 people who cut their cholesterol levels with statins, than those with higher levels of cholestrol.
I'm always delighted with results like these.
Why?
I love how the media try to get out of it whatever they want.
Some say you get more cancer when your bad cholesterol is low, others say different things.
Problem is that we don't know exactly what they have found in this study.
- The raised cancer incidence might be related to the use of statines. It's plain dirt.
- It might be related to low bad cholesterol, not to intermediate or high levels. It's already a finding that is accepted among groups of doctors.
- It might be related to the combination of statines with low cholesterol (an option the researchers forgot.)
- It might even be the result of the ways the studies were designed, conducted or to the statistical tests used or the wording of the results.
The risk of heart disease (heart attacks and strokes) is lowered, and that is proofed and accepted worldwide.
I still think that too much about medication is decided without input of the patients.
Isn't it up to us if we want to take the risk, which risk and if we can life with the side-effects of medication for the rest of our lives?
the homeopathic doctor
july 12 2007I never thought I would go "doctorshopping" outside of regular medicine.
Not that I don't believe in the many stories I've heard about miraculous changes in people, but it's financially out of reach.
Like all parents with an autistic child we've been trying this and doing that before we finally agreed with psychiatric medication: Risperdal.
He did fine for a lot of months, then at school so many things changed that he couldn't cope anymore. Talking, guiding him thorugh difficult moments...nothing helped and we were confronted with a child that was unable to be happy.
So we gave him more Risperdal, but it didn't help much.
Only taking him from school for a while gave him rest and the ability to have some control over his own emotions.
We lowered the dosage of Risperdal and when things went bad again I took the pill I saw from the corner of my eye: valerian.
He did so well, that we thought it might be worthwhile to have a good homeopathic doc have a look.
So this morning we went.
I'd mailed his history a few weeks ago, so I assumed this doc would have taken the trouble to look up what autism means.
He didn't make a good impression when we came in and he took note of the normal data like birthdate and insurance company.
I mentioned the town of our insurance company with the name.
It's done in the hospital as they immediately know where the bill needs to go.
This doc started a discussion about the fact that no matter what town I mentioned the insurance stays the same.
Hmmppffff....
An hour later he was still struggling with the list he'd made during the conversation.
He kept asking questions, waiting for me to answer, after which he started to define the question. So at times I had to modify the answer.
He clearly had no idea what to do, and after some time he told me so.
"Yes", I said. "It's always difficult when a psychiatric diagnosis clouds the person presents itself.
Some of your main diagnostic traits are those of the psychiatric disorder, so it's the question how to deal with them when you want to cure some physical and psychological problems."
He looked at me like he woke up, then dived in his cabinet and gave my son a little tiny ball: homeopathic medicine.
"Next time I'm going to put everything in the computer and see what it comes up with...", he said.
Well...give me the computerprogram and I can find out myself...
I didn't say it, ofcourse, but I thought it almost aloud.
On our way home I told my son he might observe in himself some changes, and that he might get cured from some symptoms and behaviours we don't like.
Can't have homeopathy for 110 euro without suggestion, can we?
4 march 2007 glucose teststrips
Each month I fill a system of boxes with the meds I need to take each day.
It's a neat system, and I never forget my meds.
Before I started I had a time I wasn't sure I'd taken them. It had become routine and with all evenings alike I couldn't remember anymore for sure.
So now each evening I take a box, get my stuff and put the empty box on top. The boxes have the days of the week on them, so I know for sure if I have taken them or not.
It's also easy when I have to go away for a couple of days or when I'm not sure if I'll be at home in time.
I just take the boxes with me in my handbag.
So thios afternoon I sat down, switched on the radio, got out the new bags of the pharmacy and the box with what I had left from the former recipe, and started to fill the boxes.
Great.
Then I took the old inhaler, threw it away in the bag for the old meds that goes back to the pharmacy to be destryoed in an environmental friendly way, and reached for the new teststrips for my glucosemeter.
I have a very old glucose meter.
It takes 45 seconds to measure, which is relatively long, but it still works and mI don't mind it's not as little as the new ones, and not as sophisticated.
As a matter of fact it looks like stemming from the sixties. LOL!
Then I saw it: the pharmacy again had given me the wrong strips.
It's for the newest glucosemeter... and I simply can't afford to buy a new one.
As I was walking downstairs, telling evenyone with ears that that dumb pharmacy again had made a mistake, I suddenly thought it would be a way to ask Lifescan, the firm behind my meter and strips, to inform the pharmacy a bit better.
And so I did.
Don't worry, I can have it when the pharmacy throws me out.
There's a new one in the shopping centre.
Much more convenient, and to change pharmacies I have to inform the inusrance company why I want to switch. LOL!
.
17 dec 2004 - diabetes and more
It's weird to have an injury again...
Usually I'm not as accident prone.
Well, I've found out that I can move around the house when I place my foot sideways. Stretching my foot is a painful action, so it's a whiplash of the backsidemuscle of the leg.
It'll get better in time.
Got a mail from my doc.
He stated that he'd send one last week, but only now found it hadn't been send.
He immediately slipped into the helpless mode.
We know each other longer, so we know what we're doing with the other, I guess.
Well, at times we certainly do, but if it's consiously??? Don't know.
He wrote that he and his collegue (He has one for the first time, taking over a day.) agreed with Lipitor, to try again to get my cholesterol down, after the Simvastatine caused serious
side-effects.
They also agreed with the dosage. I suggested the small dose of 10 mg to slip it in. No way I want too much burden on the liver.
I still feel very emotional that I have to take medication against cholesterol.
Always had a very low level, till the diabetes broke out and ruined my health.
The doc also stated he didn't want to double the dosage of the Avandia, because they didn't want to go by a daycurve. Only wanted the HBA1c as a guide. (It's a kind of mean value over 6 weeks to 3 months.)
Well, I don't agree at all. If the glucose spikes after a meal (283 mg/dl or 15.7 mmol/l and the fasting value is too high (157 mg/dl or 8.7 mmol/l), there is something not good, even though the HBA1c is OK. (5.7)
That means that my average over a day is below: 135 mg/dl 7.5 mmol/l. Well I almost never measure values that counteract the high values to get a mean that low.
And that might be caused by the fact that the amino-acid disorder I have caused the bodycells to be built a bit different, so they can't uptake as much "indicator", thus causing a low HBA1c.
Well, in the mail I wrote back, I pointed that out.
But I also made clear I don't care anymore.
If he thinks he knows better: time will tell. It always did.... and as I base my opinion upon scientific research, time allways tells in my favor.
He also aksed me to come for a check-up, which is interesting, because he never takes initiative.
Made me remember the last time we had contact.
My iron and ferritine kept rising, going far beyond the maximum acceptable level, pointing towards hemochromatosis. When I needed another check-up I asked for measuring the ferritine.
He refused....because the health organisation needed cut-backs.
Haha!!! I wasn't asking for a DNA test! LOL!
So I told him why I asked my question and got the form for a test.
But I still feel a bit irritated, because I've always tried to be far away from doctors. I only
go when I really have to.
So a broken finger, a broken toe, a whiplash, and more, haven't been under the eye of any
docter. I know what needs to be done, so that's it.
Now I skipped three check-ups. (No need to do a check-up if a doc doesn't change medication.) So I saved the health system a lot of money. LOL!
I've written him why I hadn't been able to go to the hospital to get my bloodwork done.
Also gave a quick description of my physical situation.
But if he wants to see me anyway, I'm available monday-morning, if the waiting time isn't too long.
Well, we'll see.
All I want is a doctor that takes me serious and who knows his bits and trusts me when I say my thing.
Y got her schoolreport.
We compared how far she and her sister are with reading and calculation.
Y is already doing more difficult things at calculation, but has lower points.
We all decided to top compairing points, because they can't be compaired.
Well, regardless of how the girls do at school, they have sound common sense and always a
goodmood.
That's far more important!!!
Psychiatry failed to call back, so I was really exceptionally firm with my autistic son, making him clear aaagaaiiinnn that certain behaviour is absolutely unacceptable.
Don't want another weekend like the last ones.
But L is acting out, so I guess he'll spoil the weekend.
